A Case For Why You Need To be An Advocate
Last week, almost 350 patients, including me, spent three days on Capitol Hill as an advocate for various components of healthcare reform. With all of our healthcare components currently under [...]
Why Rare Disease Should Matter To You
Rare disease is the number one cause of death in babies under a year. Currently, there are over 7000 rare diseases recorded with the number growing every year. Unfortunately, 95% of all rare [...]
Get Stress Free Payment For Medical Bills Now
If you’ve ever dealt with a long term illness, chances are high that you have had to tackle insurance coverage issues. If you are living in the United States, chances are even higher that your [...]
5 Bills That can Save A Child’s Life (or Your Own) and Two Things That May Kill You
I recently spent a week in Washington DC representing Myasthenia Gravis, an autoimmune disease I have, for Rare Disease Week (yes, that’s a thing). I was also lobbying Congress on upcoming [...]
