1. The illness I live with is: Myasthenia Gravis
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: Same time
4. The biggest adjustment I had to make is: Realizing I’m not superman
5. Most people assume: I am (haha)
6. The hardest part about mornings are: Getting up
7. My favorite medical TV show is: I think most are stupid
8. A gadget I couldn’t live without is: My smart phone
9. The hardest part about nights are: Breathing
10. Each day I take 21 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: They keep me chugging along
12. If I had to choose between an invisible illness or visible I would choose: Neither!
13. Regarding working and career: It’s hard but important to contribute
14. People would be surprised to know: I have no depth perception
15. The hardest thing to accept about my new reality has been: I can’t always be there for my family
16. Something I never thought I could do with my illness that I did was: Travel – but I can!
17. The commercials about my illness: There are none. Ever.
18. Something I really miss doing since I was diagnosed is: Running
19. It was really hard to have to give up: staying out at night
20. A new hobby I have taken up since my diagnosis is: blogging
21. If I could have one day of feeling normal again I would: Go to Disneyland (duh)
22. My illness has taught me: How strong I am
23. Want to know a secret? One thing people say that gets under my skin is: You’ll be fine
24. But I love it when people: Say I look well
25. My favorite motto, scripture, quote that gets me through tough times is: I’m stronger than my disease
26. When someone is diagnosed I’d like to tell them: It’s just an adjustment not the end of the world
27. Something that has surprised me about living with an illness is: I can be well without being healthy
28. The nicest thing someone did for me when I wasn’t feeling well was: There are too many to count
29. I’m involved with Invisible Illness Week because: I want people to know they aren’t alone
30. The fact that you read this list makes me feel: Vulnerable but happy
Thank you for being so authentically vulnerable… Having someone just really listen & hear
you is very powerful medicine
Simply put, you are awesome.